Researchers have successfully treated the skin diseases epidermolytic ichthyosis and ichthyosis with confetti by transplanting genetically healthy skin to inflamed areas. Their work could pave the way ...
As influencer Hannah Campbell mourns the death of her 10-month-old daughter, Elliana Rose, she is also doing her part to fight the disease that affected her baby girl. “Our sweet girl Elliana Rose ...
Gene-editing tools like CRISPR have unlocked new treatments for previously uncurable diseases. Now, researchers at the ...
This article is part of Nature Outlook: Skin, an editorially independent supplement produced with financial support from LEO Pharma. About this content. KaDee Troop is the mother of seven adopted ...
SALT LAKE CITY (ABC4) — A Utah woman is sharing her story after she survived an incredibly rare and often fatal skin disorder caused by an allergic reaction to antibiotics. Brandi Nicole Pond, who ...
The drug inhibits progression of epidermolysis bullosa in skin. Recessive dystrophic pidermolysis bullosa (RDEB) leads to excessive deposition of fibrosis (COL I) in the skin in response to skin ...
Patients suffering from rare and life-threatening skin disorders may soon see hope, as the national policy for rare diseases, which currently covers 63 conditions, is set to be expanded to include ...
After a poor showing of its COVID med vilobelimab in a rare skin disorder trial, German drugmaker InflaRx is going back to the drawing board. The independent data monitoring committee assessing a ...
Quoin Pharmaceuticals Ltd. has filed a U.S. patent application for new topical formulations aimed at treating several skin diseases, specifically Netherton Syndrome (NS) and Peeling Skin Syndrome. The ...
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Set up registry for rare diseases, support group urges govt
Without it, patients remain largely invisible, making it difficult to plan services, allocate resources, or coordinate ...
Overall Count and Share for 'European Reference Network for Rare and Undiagnosed Skin Disorders (ERN-Skin)' based on the 12-month time frame mentioned above. Note: Articles may be assigned to more ...
Researchers from Nagoya University Graduate School of Medicine in Japan have successfully treated the skin diseases epidermolytic ichthyosis (EI) and ichthyosis with confetti (IWC) by transplanting ...
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